BEST FOR THEIR CHILD. A DAY OF CARING AND A DAY OF HOPE FOR FAMILIES BATTLING A TERMINAL NEUROLOGICAL DISEASE FOR THEIR CHILDREN, GOVERNOR JIM PILLEN DECLARED JUNE 9TH AS BATTEN DISEASE AWARENESS DAY ...
INDIANAPOLIS (WISH) — Helen’s Pink Sky Foundation is hosting a lemonade stand event to raise awareness and funds for Batten disease research. The event, inspired by Helen’s upcoming fourth birthday, ...
Helen’s Pink Sky Foundation is committed to advocacy, research, and family support in the fight against Batten Disease (CLN2). Inspired by four-year-old Helen Born, the foundation funds groundbreaking ...
Australian girl is one of 10 or 11 worldwide with rare form of Batten's disease. — -- When Olivia Thurston was born on January 15, 2008, weighing in at 8 pounds and 6 ounces, she was a happy and ...
Since its launch in April, the foundation has dedicated nearly $1M for research and rallied a growing community EDEN PRAIRIE, MN / ACCESS Newswire / October 16, 2025 / Helen’s Pink Sky Foundation will ...
EDEN PRAIRIE, MN / ACCESS Newswire / October 16, 2025 / Helen’s Pink Sky Foundation will take center stage at one of the world’s premier sporting events this fall, with its logo set to appear on BWT ...
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