ABC Columbia

Jack is Back! Chapin student returns to school following experimental gene therapy treatment

Two years ago, he was diagnosed with a terminal illness called Batten disease -- often leading to blindness, seizures, and ...
Townsville Bulletin

Family's race against time to make memories for terminally ill toddler

A Whitsundays family is racing against time to create precious memories with their two-year-old daughter after doctors confirmed she is one of just two children in Australia diagnosed with a rare and ...

Midlands student with rare genetic disorder returns to school after treatment

A 9-year-old Midlands student made his return to school Tuesday after finishing treatment for a rare genetic disorder.

B.C. to continue covering 9-year-old’s $1M drug as it reviews cancelled coverage

Charleigh Pollock has a neurological disorder called Batten disease that leaves her with recurring severe seizures and ...
The Indianapolis Star

Helen’s Pink Sky Foundation to Feature on BWT Alpine Formula One Team’s A525 to Raise Awareness of Batten Disease during the Formula 1 United States Grand Prix 2025

Since its launch in April, the foundation has dedicated nearly $1M for research and rallied a growing community EDEN PRAIRIE, MN / ACCESS Newswire / October 16, 2025 / Helen’s Pink Sky Foundation will ...
Tennessean

Helen’s Pink Sky Foundation to Feature on BWT Alpine Formula One Team’s A525 to Raise Awareness of Batten Disease during the Formula 1 United States Grand Prix 2025

EDEN PRAIRIE, MN / ACCESS Newswire / October 16, 2025 / Helen’s Pink Sky Foundation will take center stage at one of the world’s premier sporting events this fall, with its logo set to appear on BWT ...